Tuesday, January 27, 2009


I had my appointment with the third neurologist this morning. My primary care doctor suggested that I see this neurologist in light of the continued headache and vertigo as well as the progression of some other symptoms. While I didn't walk out of his office today with any kind of concrete answers as to what, exactly, is happening with my body, we did formulate a plan and will see what happens from there. Yahoo.

Starting today and for the next 4 days, I will be receiving an intravenous infusion of methylprednisolone and magnesium to reduce and kind of inflammation that may be causing the headaches. If this 4-day infusion works, then he will be forced to look in a certain direction for a cause of these headaches. I will have to go to an infusion clinic for 2 hours a day while this medication drips into my veins. Because my husband works and I won't leave the kids with anyone but family, I have to go at night, missing dinner and bedtimes for both kids. This better work.

I also have a prescription for Valium, 2 mg, to be taken 3x/day. Valium is apparently the drug of choice when treating vertigo. I'm a little leery of taking it, but he asked that I give it a try for 2 weeks. We'll see.

Doctor wanted to repeat a spinal tap. Remember how I had a spinal tap done in July of 2008? How it was supposed to be done to rule out MS way back when? Yeah. A MS workup was not performed on the fluid. I'm a little upset over that, because the experience was awful (took the jerk 4 full pokes to find the right spot), and because it was supposed to be performed to rule out MS. The kicker is that the doctor at the time TOLD ME that the tap ruled out MS. This is why I have little faith in the medical system. I wonder if I could sue him for fraud? In any case, I told him that I'd prefer to avoid a repeat tap based solely on my experience from last time, and he agreed to send me for non-invasive tests that may also indicate MS - a VER and a BAER. One tests the eyes and will indicate visual deficits, which I have begun to notice, and the other tests signals between the cochlea and the brain. If these two tests come back with negative results, I will likely follow the doctor's suggestion of having the tap repeated.

Finally, I have a test tomorrow called a TCD. It's essentially a sonogram of the brain, and will show live-action blood flow. It will be performed with a bubble study to determine the possibility of emboli from the PFO. I thought that MRA/MRV would've ruled this out, but I guess not?

I'm praying that these tests and medications will provide relief and assist in eliciting some answers. I really am so tired of all of this. Savannah will turn 1 in May, and it makes me sad to think that the majority of the first year of her life was spent like this.

Friday, January 09, 2009


I received preliminary results back from the brain scans I had the other night. The MRA (magnetic resonance angiogram, looking at blood vessels) and MRV (magnetic resonance venography, looking specifically at the venous system) both came back negative, which means that no small clusters of clots and no aneurysms were observed. There was apparently one area of the MRV that wasn't of good quality so I have to go back in tonight to have that part repeated, but I'm guessing nothing will show up. So this is good news.

Back to the drawing board. I see the third neurologist in about two weeks. He's also a headache specialist, so if he can't come up with anything then we'll proceed to the Cleveland Clinic to take the immunology route. I refuse to believe that there isn't a reason for feeling this way, and I"m not about to resolve to spend the rest of my life feeling this way. No thanks.

Thanks for putting up with my posts about medical issues and the worries that accompany the issues. Your comments, prayers, and Internet presence actually do mean a great deal to me.

Tuesday, January 06, 2009

Yesterday I learned that I have a PFO, or a small hole in my heart. In the 4 or 5 prior echocardiograms that I have had, this has never once shown up.

But now tonight I am scheduled for a brain MRA and MRV to determine whether or not I have had any TIAs, or, essentially, mini-strokes.

I have a blood clotting disorder. I have a history of blood clots to the lung. I also have several brain MRIs that have shown white spots. White spots = strokes?

I'm scared. I can't stop having visions of leaving my babies long before I'm ready.